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#1 2003-10-14 21:27:03

lilone
Member
Registered: 2003-10-14
Posts: 1

HELP!! Trying to help brother who has suffered after Remicad

Hello,  I am searching for anyone who has had ill effects after Remicade.  My brother was taking Remicade for about 2 years - he suffered flu like symptoms, and more i just can't remember all the others.   He finally insisted they stop the treatments (about 1 year ago) - Recently he was rushed to the ER for an accute respitory attack and seizures.  He beleives this to be a result of his Remicade treatments.   I'm lost for how to help him and at times he almost sounds paranoid when he tells me he does not trust his Doctor's.  That they are not being honest with him and acknowledging that these are side effects of the treatments.  If any of you out there can give me some insight as to what i can do to help my brother through this - as he is convinced that he is going to die....

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#2 2003-12-28 21:42:30

Jewel
Member
Registered: 2003-12-28
Posts: 5

Re: HELP!! Trying to help brother who has suffered after Remicad

Hello.  I so HOPE you still log in to this site!  I'm new here myself.  I found this message board quite by accident and your message jumped right out at me.  I am also posting this on the message board for others to see. 

PLEASE, tell me your brother is no longer taking Remicade!  If he isn't, I hope he's doing better.

About two years ago, my mother died from what we believe was the direct result of Remicade use.  Here is the link to a webpage I made for her.  At the bottom of the page is what happened to her.

[url]http://jewelraider.homestead.com/Mom.html[/url]

When my mother first went into the hospital, she was only short of breath.  Within 6 weeks, she was dead.  Her lungs went from being nice, wet sponges to being like a BONE DRY sponge - a sponge unable to function.  The doctors at first figured it was TB, but then ruled it out and said they couldn't figure out what was wrong even after doing a biopsy on the lungs.  They [i]never even admitted[/i] that she could have died from the Remicade, though the autopsy reports say she had ARDS (Acute Respiratory Distress Syndrome) - something that can be caused by the Remicade!!!

We tried to sue to get that stuff off the market, but no one would help us and from what I understand once a year passes, we couldn't try any more.  We didn't care about money, we just wanted the stuff off the market.  I hope someone sues the Remicade people. 

IT DOESN'T WORK.  IT KILLS.   sad

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#3 2004-09-30 22:16:33

Jewel
Member
Registered: 2003-12-28
Posts: 5

Re: HELP!! Trying to help brother who has suffered after Remicad

Hi...wondered how your brother was doing?

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