Injurytalk.com - Brought to you by Parker Waichman Alonso Mark, LLP

I too am scared about all this!  I have always been extra sensitive to drug side effects and was shocked when I read that Neurontin has so many.  I have been a diabetic for almost 30 years and suffered nerve pain from a hysterectomy in December of 2003.  My doctors told me very little about Neurontin, just that it had been reported to have great success with diabetic nerve pain.  I went on it about 2 months ago and instantly hated the "drunken" feeling.  I really wanted to go off it but my doctors (and a well-known pain clinic also) told me that my body would eventually tolerate the side effects and urged me to keep increasing the dosage "because the testing all showed such good results".  I finally looked up Neurontin and was shocked to see the news of the fraud.  But if I have learned one thing over the years, it is that my doctors should only be secondary to my health - I have to be the one in control.  So I talked to my doctor (who knew nothing about the lack of testing and was as equally shocked as I was) and she agreed to take me off Neurontin.  I have been tapering off it for the last two weeks and feel much better already.  My pain has been better (one of the side effects is abdominal pain, which it was supposed to be treating) and it feels SO good to be able to think clearly again.  While I was taking Neurontin, I would wake up in the night with both of my arms asleep and aching - and that has gone away since I have been lessening my dosage.  I also had a low-grade fever which would make me sweat and then chill - that has also gone away, etc. etc.  I have been back to the pain clinic, who also didn't know about the fraud, and we are going to experiment with other pain relief methods.  So, my advice to you is - talk to your doctor!  Chances are, he hasn't even heard about the lack of testing.  And he should listen to your concerns.  If the pain continues, see a pain clinic - they are very good and make you feel like you aren't the only one suffering and that there are really ways to make you feel better.  As for me, I'm now on Vicodin (the pain clinic insists that the percentage of addiction is extremely low with true pain sufferers) and am trying exercises and other measures to control my pain.  Bottom line - Get Off Neurontin and talk to your doctor about it.  If he's a good doctor, he will be glad you are sharing your feelings with him.  Good luck - let me know how it goes.  You aren't alone!

Aloha! I posted  a comment listed as guest on 5/7/04 at 7:58 pm. I had a problem registering to the website due to brain fog--Duh a side affect from neurontin!!!! Anyone who has been prescibed this drug please write and or send me a message. There is strength in numbers and we have to ban against the drug co. to get the message across! I started a support group here, but had to give it up  because I was pretty much bedridden towards the end. All the people were on Neurontin!!! I'm just now connecting the dots. It's late here now so for now I must close==and Aloha means Hello. goodbye and I love you. All which apply. Take care and please write. Skooze

Hi Queen, this is the first time I 've been on my computer in 4 months. I had 354 emails alone! Anyhow I have had  Dr's tell me tha t it'sok to mix meds, when we all know it's not. Usually after a 1 to 2 week trial period the side effects show up. A lot of these Dr's are getting "kickbacks" for prescribing the meds, and they don't live with the results. Listen to your body. If it doesn't feel right don't take it. I have RSD for 5+ years, and when I was on neurontin, I could not function. I had a drunkin like feel and talked & walked that way. I have been off for 1 year now, and some of the NeRotton side effects still linger. Hope this helps
Aloha Skooze